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Children and Families

Families with children with disabilities rely on many programs to support them at home.

About the issue: (Top of page)

Families with children with disabilities receive support through many programs. These programs provide the services and supports families need to keep their children at home. Some of the services that families receive are ramps, respite care, special medical equipment, personal care, and therapies to bring the child up to age level.

There are four major programs that help families. They are the Family Support program, the children’s Medicaid waiver program, the Katie Beckett program, and the Birth to Three program. The Birth to Three and the Katie Beckett programs are entitlements for those meeting eligibility criteria. Both the children’s waiver and the Family Support programs are limited in terms of availability and resources. Families can’t always receive what they need. And both have waiting lists to get on the program.

Wisconsin is working on changing the way these programs are run. The intent is to make them easier for families to get the help they need. Right now families have to know about each of these programs in order to access them. They also have to apply to each in order to get them. Eligibility criteria are different for each. It is a complicated and confusing arrangement.

Why does this matter to people with disabilities? (Top of page)

These programs are often the only resource families have that allow their children to remain at home. If families are not able to get these services, there is a higher risk their child will be placed in an institution. The financial and emotional cost to place a child away from family is huge. Families have a stake in how a new system will be constructed. Will it be flexible? Will it be accessible? Will it be adequately funded?

Are there any proposals that would make a change in this issue? (Top of page)

Who can I contact with my questions? (Top of page)

John Shaw
Wisconsin Council on Developmental Disabilities
201 W. Washington Avenue
Madison WI 53703-2796
Phone: Voice (608) 266-7707; TDD (608) 266-6660
Email: John1.Shaw@wisconsin.gov
Fax: (608) 267-3906

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Background Information For This Issue (Top of page)